Save More Lives Like Nejat Nuredin

"You might wonder why I want you to spread epilepsy awareness when you don't have epilepsy. At one point, neither did I."

About Us
CareEpilepsy Ethiopia was born from lived experience in 2015, with a simple belief that no child, adult, caregiver, or family should be left alone because of epilepsy or neurological disability. We are a pioneering non-profit organisation working to make epilepsy visible, treatable, understood, and prioritised in Ethiopia. 

Every day, we meet adults living with epilepsy, children with epilepsy and neurological disabilities, and caregivers who are carrying far more than a diagnosis. Many caregivers, especially mothers, are exhausted, isolated, afraid, and struggling to protect their children while also facing poverty, stigma, and limited access to care. 

Our work brings clinical care, neurological assessment, psychosocial support, caregiver wellbeing, livelihood guidance, and community education together, so people are not passed from one service to another without real support. Adults and children receive safer clinical care and structured support, while adults with epilepsy and caregivers receive counselling, peer connection, health guidance, soft skills training, and practical support. This helps caregivers manage their child’s epilepsy with greater knowledge and confidence, while supporting adults with epilepsy to understand their condition, manage it safely, and live well. 

We also work with communities, faith leaders, schools, health workers, government partners, and local actors to challenge stigma and create a safer, more understanding community. 
CareEpilepsy Ethiopia
This video tells the story of CareEpilepsy Ethiopia, a charity in Ethiopia that stands beside people living with epilepsy. Behind every clinic visit, every medicine provided, and every family we support is a story of struggle, resilience, and hope. We fight stigma in schools and communities, we listen to families who often feel forgotten, and we push for change so that epilepsy is no longer ignored. This is not just about treatment—it’s about giving people the dignity to live without fear and the chance to be seen, heard, and included.
How It All Started 
Thirty years ago, I was thrust into a world of uncertainty when seizures became a constant companion in my life. The unpredictable storms of generalized tonic-clonic seizures left me battered and bruised, both physically and emotionally. From nearly losing my unborn child to grappling with memory challenges, my journey with epilepsy was marked by pain, embarrassment, and silent suffering.  

Mission

We exist to radically improve the quality of life of people with epilepsy and associated disabilities and change perceptions of epilepsy in the community.

Our Vision

We envision a future where people with epilepsy are protected, respected, live free from discrimination and stigma, and given the opportunity to realise their full potential.

Our Goal

To improve the safety, health, and life opportunities of people with epilepsy, neurological disabilities, and their caregivers through early diagnosis, treatment, integrated care, education, livelihoods, community awareness, trained health providers, strong partnerships, and inclusive policies.

Our Good Start Challenge Journey
"When a child is born, a parent is also born"—a phrase highlighting that the transformation of a parent deserves as much care as the newborn.
The Good Start Challenge is a global initiative supporting practical solutions that improve the wellbeing of parents and caregivers of young children in underserved communities. For CareEpilepsy Ethiopia, this has been an opportunity to strengthen support for caregivers of children with epilepsy and neurological disabilities, especially families affected by displacement, poverty, stigma, and limited access to care.
Epilepsy In Ethiopia
Watch the story of CareEpilepsy Ethiopia and the people whose lives have been touched by our work. This video shares the challenges faced by people living with epilepsy, the progress being made in care and advocacy, and our commitment to ensuring that anyone with epilepsy can live safely, confidently, and fulfil their potential with the right support and medical care.

Epilepsy First Aid in Amharic Language 
When someone has a seizure, knowing what to do can make all the difference.This video explains epilepsy first aid in Amharic, so families, teachers, caregivers, and communities can respond with calm, care, and confidence. A few simple steps can help keep someone safe and protect their dignity.

Our videos are more than just content, they’re a gateway to understanding epilepsy. Dive into educational insights, break the stigma, and empower lives.
Watch, learn, and share!

Real stories, practical guidance, and reflections from CareEpilepsy Ethiopia’s work to improve epilepsy care, awareness, dignity, and inclusion across Ethiopia.

CareEpilepsy Thanksgiving 2025 šŸ“… October 11, 2025 šŸ“Jupiter International Hotel, Addis Ababa

  •  10/16/2025 03:58 PM

A heartfelt day of gratitude and celebration! We honoured our amazing partners, doctors, and volunteers who have helped transform epilepsy care in Ethiopia. Seeing Prof. Redda among the awardees made it even more special. Thank you for believing in our mission of hope and better care.

This Ethiopian New Year was extra special šŸ’« 12th September 2025.

  •  10/16/2025 03:58 PM

This Ethiopian New Year (2018 EC) was especially meaningful for 21 families who received holiday food support—and, for some, new clothing, thanks to the generosity of our supporters. Their ability to celebrate with dignity brought genuine joy. Our heartfelt appreciation goes to Yayeneabeba (Canada), Kidest (USA), the Total Energy team (Addis Ababa), Abebe Yisak (USA), and our dedicated CareEpilepsy team for making this possible. Wishing everyone a joyful and healthy Ethiopian New Year 2018 (EC).

CareEpilepsy at the 36th International Epilepsy Congress – Lisbon 2025 from 30 August - 3 September 2025

  •  10/16/2025 03:58 PM

An inspiring and productive week in Lisbon, where I joined global leaders at the International Epilepsy Congress 2025. CareEpilepsy’s abstract was selected by the ILAE Scientific Committee, and our organisation was recognised as a trendsetter in IGAP implementation, an important milestone in our 10-year journey of improving epilepsy care in Ethiopia.


  • Welansa and Zeleke Building, Addis Ababa, Ethiopia
  • šŸ“ Our Location: Behind Welansa & Zeleke Building, near NOC Gas Station, Megenagna (around Lem Hotel) Yeka Sub-City, Woreda 08, Addis Ababa
  •  Mon-Fri - 08:30-5:30