CareEpilepsy Ethiopia was born from lived experience in 2015, with a simple belief that no child, adult, caregiver, or family should be left alone because of epilepsy or neurological disability. We are a pioneering non-profit organisation working to make epilepsy visible, treatable, understood, and prioritised in Ethiopia. 

Every day, we meet adults living with epilepsy, children with epilepsy and neurological disabilities, and caregivers who are carrying far more than a diagnosis. Many caregivers, especially mothers, are exhausted, isolated, afraid, and struggling to protect their children while also facing poverty, stigma, and limited access to care. 

Our work brings clinical care, neurological assessment, psychosocial support, caregiver wellbeing, livelihood guidance, and community education together, so people are not passed from one service to another without real support. Adults and children receive safer clinical care and structured support, while adults with epilepsy and caregivers receive counselling, peer connection, health guidance, soft skills training, and practical support. This helps caregivers manage their child’s epilepsy with greater knowledge and confidence, while supporting adults with epilepsy to understand their condition, manage it safely, and live well. 

We also work with communities, faith leaders, schools, health workers, government partners, and local actors to challenge stigma and create a safer, more understanding community.